The Princeton, NJ-based Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease. Through the generous support of The Tuchman Foundation and our numerous partnerships, we are in the unique position to guarantee that 100% of all individual donations and all net proceeds from all events go directly to research. To learn how, visit our About Us page.
The Parkinson Alliance is also the umbrella organization responsible for the Parkinson’s Unity Walk, the largest single-day grassroots awareness and fundraising event for the Parkinson’s community which takes place each spring in New York City’s Central Park, and for Team Parkinson, a fundraising event which began as an official charity of the Los Angeles Marathon and is growing into additional race events in other major U.S. cities. The Parkinson Alliance is also devoted to improving the quality of life in the DBS-STN community. Margaret Tuchman, President of The Parkinson Alliance, underwent bi-lateral deep brain stimulation of the subthalamic nucleus (DBS-STN) in 2000. As a way of keeping the DBS community connected and informed, Margaret founded DBS-STN.org.
Updated: Oct 31st, 2011
Upcoming Events:
• January 18-22 - Princeton Dance for Parkinson's
• March 17-18 - Team Parkinson at the Los Angeles Marathon
• April 28th - 18th Parkinson`s Unity Walk
• July 29th - Team Parkinson at the San Francisco Marathon
• September 22nd - 13th Annual Carnegie Center 5K and One Mile Fun Run (Rain or Shine)
A Consensus Meeting to Discuss Deep Brain Stimulation for Parkinson's Disease
On April 1st-3rd The Parkinson Alliance (with shared sponsorship provided by the Davis Phinney Foundation, the LSVT Foundation, and the National Parkinson Foundation) convened a panel of the world’s experts on DBS for PD. The task assigned to these experts was not to craft a typical consensus statement for themselves, but to come up with a document aimed squarely at their true customers—the patients. These world leaders discussed the current matters related to DBS therapy and where we need to go with this intervention. The ultimate focus was on improving the effectiveness of the intervention and the quality of life of those individuals who have undergone or those who will choose to undergo DBS.
The topics of the Consensus Meeting were many and included patient selection, gait and speech DBS outcomes, non-motor DBS outcomes (mood and cognition) and long-term DBS outcomes, to name a few.
View a written report of the Patient Forum that occurred at the Consensus Meeting.
Please visit www.dbs-stn.org to view the following full report on the DBS Consensus:
Deep Brain Stimulation for Parkinson Disease: An Expert Consensus and Review of Key Issues
Jeff M. Bronstein; etal
Arch Neurol. Published online October 11, 2010. doi:10.1001/archneurol.2010.260